The UK FSHD Patient Registry, accessible on the web at https://www.fshd-registry.org.uk/, is operated by the John Walton Muscular Dystrophy Research Centre, Newcastle University.
UK FSHD Patient Registry
John Walton Muscular Dystrophy Research Centre
International Centre for Life
Newcastle upon Tyne
Tel. +44 (0) 191 241 8640
Patient registry software architecture and programming by Marcel Heidemann
Webdesign, application design and illustrations by Ricarda Kiel
Icons by Mark James / famfamfam
All the information and advice on the UK FSHD Patient Registry website has been assembled to the best of our knowledge. However, in any individual case consultation with the attending doctor or other qualified health professional is strongly recommended. The registry website contents are for informational purposes only and not intended to be a substitute for independent professional medical advice, diagnosis or treatment. All users of the registry website are responsible for their own medical care, treatment and oversight.
Although the greatest possible care has been taken in compiling the registry website, we cannot guarantee that all the information provided on these pages is accurate. Newcastle University assumes no liability for the accuracy of the registry website contents and will not be held responsible for any loss, damage or inconvenience caused as a result of any inaccuracy or error within these pages.
Newcastle University also assumes no liability for the contents and their accuracy on any third party websites that are accessible through links via the UK FSHD Patient Registry website. These links are provided purely for your convenience, and do not imply that Newcastle University supports the information given on those pages.