If you do not live in the UK please do not register here as your information will be removed. A list of registries covering other countries can be found on TREAT-NMD's website.
Please complete this form and click on the “Continue” button to start the registration. Please see the patient information and data protection pages for information on how the data you enter will be used.
If you have already registered and would like to update your data or add another patient, you don't have to fill in this form again. Just go to the login page and login with the e-mail address and password you previously registered with.
Note to professionals: Doctors and medical professionals cannot register here, if you are interested in being involved please contact us.