UK FSHD Patient Registry
To help advance the research and development of treatment, therapies and care for all those diagnosed with FSHD.
There are currently 1063 patients registered in this database.
The registry is funded by Muscular Dystrophy UK with support from the John Walton Muscular Dystrophy Research Centre, TREAT-NMD Alliance and MRC Centre for Neuromuscular Disease.
Coordinated by:
Funded by:
Affiliated to:
